It's about time I did another one of these. In my last post I said: "I'll make a longer update after my next eye clinic appointment on the 16th February".
So yeh. That never happened. Apologies.
That was over 3 months ago, and my eye still seems to be doing good! I've heard of people getting relapses many months and/or years after having the disease seemingly defeated, so it's not guaranteed that it's gone forever. But still, I have had nearly 4 months now without any trouble! That's as much time as the disease itself lasted.
That's all I think I have to say for the moment. It's probably safe to assume that I won't make another update after this (unless I have a relapse). In which case, thank you all for reading and I hope that this has helped others who are suffering through this horrible disease.
Saturday, 7 February 2015
- 119 days since first symptoms
- 4 days until expected clearance date
Just a quick update. Eye seems to be doing ok since I started to reduce the eyedrops, although it felt slightly irritated the last few days. This could be put down to the surface layers of the eye healing. Hopefully the bastard amoebae stay away now. I'll make a longer update after my next eye clinic appointment on the 16th February.
Wednesday, 21 January 2015
- 102 days since first symptoms.
- 21 days until expected clearance date.
Now, it's not 100% certain just yet, there could be other parts of my eye where it may be hiding, but I was told to start gradually reducing the amount of eye-drops I'm taking and see how that goes. Fingers crossed now that it's gone for good! I'm so incredibly happy that this horrible fuckin disease has an end in sight. I would also like to extend a massive thank you to all the lovely doctors and nurses at University Hospital Limerick for guiding me through this, as well as my friends and family for putting up with my perpetual whining over the last few months.
Also, to all of my friends who are also contact lens wearers, for the love of god, don't fuck around with your contact lenses. Don't wear them when you sleep; don't wear them swimming; if they're dailies, don't re-use them; if they're monthlies, make sure you fuckin clean your contact lens case EVERY DAY, don't store them in water, and use the correct type of contact lens disinfectant. Not following these precautions properly left me with a fucked up eye for 4 months, and that's just the mild version of the disease. More severe versions can result in the need for a cornea transplant, or even having the eye removed altogether. I only just about narrowly avoided this. So yeh. To reiterate my point: DON'T FUCK AROUND WITH YOUR CONTACTS.
Sunday, 4 January 2015
Hiya. This is in no way me procrastinating from my super important Interim Report. Not at all. Not one bit. BUT, I've been seeing a lot of people sharing petitions to stop Channel 4 from airing a comedy program about the famine.
Ah now. You can't be at that.
Because that folks, is CENSORSHIP.
Ah now. You can't be at that.
Because that folks, is CENSORSHIP.
And censorship is a very bad thing. Nothing should be off limits when it comes to art. Nothing. You can't be ok with making fun of one thing, but as soon as it is something that relates to you or your culture, be like "NOPE, THATS NOT OK. FUCK THAT. PETITION". It's sorta similar to what happened with The Interview recently (minus the cult of personality and nuclear weapons). Or like the time Isaac Hayes left South Park cuz they made fun of scientology. He was grand when they were poking fun at every other religion, but when it came to his, he just fucked off. That's not ok. That's prickish behaviour. To paraphrase Matt Stone "when you start saying this and this and this are ok to make fun of, but not this, then that is when the real bigotry begins". Anyway. I'm bad at words, and I realise my point isn't very focused, but The Rubberbandits and Charles put it better than I ever could.
Friday, 2 January 2015
- 83 days since first symptoms.
- 40 days until expected clearance date.
There is still, as there always has been, the risk of a flare up. And if that were to happen, I'd be back to square one again. That would be completely and utterly heart-breaking. But, it's important to stay optimistic... albeit cautiously optimistic!
Beyond that, there's not really much else to share with you without delving into my personal life, but that's for another day. I'm looking forward to the blog post where I can finally declare that I am free of Acanthamoeba Keratitis. Could be a month, could be 6 months, could be a year, could be 6 years. One of the most irritating things about this disease is how unpredictable it is. But at least with the direction it seems to be going, it looks like there could be an end in sight soon!
Friday, 19 December 2014
- 69 (huhuhuhu) days since first symptoms.
- 54 days until expected clearance date.
Apologies for not making a post in a while. I was busy.......... being not arsed. COLLEGE. ASSIGNMENTS. EXAMS. BIRTHDAY PARTIES. STANDARD PARTIES. I am justified. I've been doing things! What's that I hear you saying? "But Jamie, you have a horrible eye disease that would stop you from doing all those things!" AHA that brings me straight to the point: MY EYE IS FEELING FANTASTIC!!!
Now, it's not 100% just yet. But it's definitely getting A LOT better. The last few weeks have seen a vast improvement. There is now more white in my eye than red, so much so that it pretty much looks normal. It looks like what any person's eye would look like if they were tired. Needless to say, I am delighted that my eye has been showing such improvement (KNOCK ON WOOD). I'm optimistic (or should I say opticmistic HUHUHUHU), but cautiously optimistic. There is always the risk that it could flare up again. It would be just my luck that just as it's getting better, it would suddenly flare up again and make shite of my eye. So, if anything, I'll just try to enjoy it while (or if) it lasts. If this whole experience has taught me anything, it's to appreciate every moment. Cuz things can go to shite so easily.
HERE IS A COMPARISISISISON
Top picture is from the 14th of October, just a few days after I'd been diagnosed. The bottom picture is just from a few moments ago. The eye-lid is still a bit droopy, but you can see that it is waaaaaaaaay less red.
I know I say this every post, but I am so incredibly lucky that it wasn't as bad as it could've been. I remember reading the horror stories when I was first diagnosed, and how much fear and anxiety that put into me. Stories about people having to get several cornea transplants. Or even having their eye removed altogether. Stories of people fighting this disease for years of their lives. The fact that I am two months in and am already seeing light at the end of the tunnel, is nothing short of a miracle. I am just so incredibly grateful for that. OK. ENUF OF DA MUSHY SHITE.
I'm still on Brolene 0.1% (which oddly enough has started stinging like a bitch since my eye has gotten a lot better) and PHMB 0.02% four times a day each. Steroid drops have also been added into the mix. These do nothing to fight the infection itself, it's just there to accelerate the healing of my eye.
Ok. Well that's it for the moment. Happy Christmas!
Saturday, 22 November 2014
- 42 days since first symptoms.
- 81 days until expected clearance date.
So ya, it's probably gonna be a while before I'm 100% again. The doctor said that although I am over the worst of it and that I have made significant progress in recovery, that there are still some stubborn pockets of amoebae in my cornea. And they are just not budging. That's my progress in the last two weeks in a nutshell. There's not much else I can update ye on.
That said, stubborn pockets aside, my eye has seen improvement. Very slight improvement, but improvement nonetheless. Every week it gets a tad little bit whiter and less red. I am also at the point where my eye is more often open than closed, which is good. Especially considering it had been closed for nearly an entire month. Eyedrops are still the same. The doctor had mentioned starting me on steroid drops, but we ultimately decided against it. The steroid drops wouldn't actually help with the infection, it would just speed up the healing of my eye, making it look whiter and stuff. But the risk is that the acanthamoeba would continue to linger and potentially get worse and take longer to get rid of completely. I'd rather have the infection gone completely sooner rather than have my eye look less disgusting but be at higher risk. It's the better choice in the long run.
FEELINGS. How am I feeling? Grand to be honest. I had sorta freaked myself at the beginning of this, but I've largely gotten over it. With my eye being open most of the time now, I'm less self-conscious about how I must look to others. The thing for me to remember is that it's only gonna get better and better from now on. Knock on wood. I shouldn't have said that. Somethings gonna go wrong now. NO. FUCK THAT. THAT'S THE WRONG MENTALITY. I WILL GET BETTTTTTTTEEEEEEER.
But yeh. That's it really. I'll update ye again in a week or two or whenever I'm arsed. In the meantime, here is a vidja I made: