Saturday, 22 November 2014

Acanthamoeba Keratitis Blog 3 (22/11/2014)

  • 42 days since first symptoms. 
  • 81 days until expected clearance date.
It should be noted that the above is just an approximation. There is no guarantee that I'll be all better in 81 days, fact recent trips to the eye doctor seem to suggest that it'll be much longer. Thems amoebae are fuckin stubborn bastards. The above is just something for me to work towards, something to keep me going and give me hope. Even if it's false hope.

 So ya, it's probably gonna be a while before I'm 100% again. The doctor said that although I am over the worst of it and that I have made significant progress in recovery, that there are still some stubborn pockets of amoebae in my cornea. And they are just not budging. That's my progress in the last two weeks in a nutshell. There's not much else I can update ye on.

That said, stubborn pockets aside, my eye has seen improvement. Very slight improvement, but improvement nonetheless. Every week it gets a tad little bit whiter and less red. I am also at the point where my eye is more often open than closed, which is good. Especially considering it had been closed for nearly an entire month. Eyedrops are still the same. The doctor had mentioned starting me on steroid drops, but we ultimately decided against it. The steroid drops wouldn't actually help with the infection, it would just speed up the healing of my eye, making it look whiter and stuff. But the risk is that the acanthamoeba would continue to linger and potentially get worse and take longer to get rid of completely. I'd rather have the infection gone completely sooner rather than have my eye look less disgusting but be at higher risk. It's the better choice in the long run.

FEELINGS. How am I feeling? Grand to be honest. I had sorta freaked myself at the beginning of this, but I've largely gotten over it. With my eye being open most of the time now, I'm less self-conscious about how I must look to others. The thing for me to remember is that it's only gonna get better and better from now on. Knock on wood. I shouldn't have said that. Somethings gonna go wrong now. NO. FUCK THAT. THAT'S THE WRONG MENTALITY. I WILL GET BETTTTTTTTEEEEEEER.

But yeh. That's it really. I'll update ye again in a week or two or whenever I'm arsed. In the meantime, here is a vidja I made:

Saturday, 8 November 2014

Acanthamoeba Keratitis Blog 2 (8/11/2014)

  • 28 days since first symptoms.
  • 95 days until expected clearance date.
Hello. Week 4 of this disease has just gone past, so I'm nearly a month in. AND. I. AM. FUCKING. SICK. OF. IT.

But. I'm doing ok. Again, I need to emphasize how incredibly lucky I am. Reading other accounts of this disease, it is around this mark where the incredibly excruciating terrible horrible pain is supposed to kick in. But luckily, I have no pain. This is due to how early mine was diagnosed, and how quickly I was given the correct treatment. Again, many thanks to the wonderful doctors and nurses at Limerick Regional Hospital. In particular, Dr. Jeremy O'Connor, who has been absolutely fantastic. Reading all the accounts of the disease, I got myself all worked up thinking I had immense pain and corneal transplants ahead of me. But he put my mind right at ease, and assured me that I had largely been spared of these consequences due to mine being diagnosed so early. He did say there is a VERY MINOR chance I would have to get a corneal transplant. We'll cross that bridge when it comes to it. Even if that does happen, at least the silver lining is that I could end up with two differently coloured eyes. I'D BE JUST LIKE DAVID BOWIE.

SO HOW IS MY EYE. It's slightly better. Some white has started to return, and the sensitivity to light has eased off slightly. I've even, quite courageously, OPENED MY EYE a few times. AND TO ALMOST NO PAIN OR EXCESSIVE DISCHARGE. almost none. So, again, I am incredibly lucky. It could be SO SO SO much worse. Google Acanthamoeba Keratitis, and you will be given a plethora of horror stories. There's a part of me that's a little afraid that maybe it's all still ahead of me, the horribleness. But that's just paranoia. And it's best to avoid paranoia in this situation. It's a slippery slope.

As for my eyedrops, I'm still on the same stuff. Getting a hold of the Polihexanide 0.02% has been a bit of a pain in the arse, lots of paperwork cuz it has to be ordered in especially from the UK. I had to fill in a special form for the HSE so that I don't have to pay €140 for it. BECAUSE FUCK PAYING €140 FOR ONE FUCKING BOTTLE OF EYEDROPS. Sorry, I keep shouting in this blog. I'M JUST SO FULL OF RAGE. Also, apparently the factory that makes the Polihexanide 0.02% EXPLODED. IT FUCKING EXPLODED. WHAT. srsly, wots goin on? lol

Feelings. How am I feeling? Better. I've sorta stopped giving a fuck about the fact that I look like a squinty one-eyed weirdo to everyone. Because there's not much I can really do about it, it's just the way things are and I have to deal with it. An interesting thought occurred to me the other day. I remembered when I was little, about 3 or 4 years old, an ad came on telly, a charity add, talking about how African children are getting bacterial infections in their eyes making them go blind, accompanied with graphic imagery of the children's eyes. This fucking terrified me, sent me into hysterics as a child. I remember just hysterically crying in my mother's arms, and her telling me not to be afraid because it would never happen to me. But here I am, with amoebae having invaded my cornea. Amoebae that have been known to make people go blind. The thing that scared me so much as a child is actually happening to me.

Talk to ye next week.